I am consatantly bombarded with people wanting me to donated to the Heart association, Breast Cancer research MS and many others, how long will it take for people to have an awareness of Parkinson's? This disease it like being slowly tortured over a period of as long as 30 years. Imganie if you were to do isometric exercises 24/7 how you would feel--that is what many PD patients have to contend with.
PD is when the dopamine producing cells of the brain start to die. By the time a person is diagnosed with PD they have already lost up to one third of these precious cells. PD, although not believed to be hereditary, does tend to run in some families. The weakness is in the body and it waits until it has a trigger to start the disease.
In Jim's case there are no family members who had the disease. While putting himself though college he worked one summer at the Diamond Shamrock plant in Pasadena, Texas. He was put down into a storage tank with oxgen and protective garments to clean it. He was monitored on a regular basis for chemical poisoning. When he tested positive for Mercury poisoning they put him on another job. I wonder why he wasn't taken off that job before he tested positive? Or why didn't they provide him with medical support for the future if he did develop any debilitaing effects from the poisoning?
Every PD patient, although suffering from the loss of the same type of cells, has a unique reaction to the loss. Some have what is called freezing, where they take a step and cannot stop the forward motion, some have tremors, and some have both. DBS does not help those whose symtoms are slowness of movement and freezing. DBS also does not cure or stop the progression of the disease. It continues to progress and debilitate. When Jim was diagnosed 16 years ago, I asked the doctor, "How soon will there be a cure?" He told me it was about 5 years away. When Jim had his DBS in 2006, the answer was the same. And now 16 years later there still in no cure. No one cares until it affects them or their family.
